He cannot find his tape. We awakened to tears. He wants to fix something. A book in pieces, he says, between tears. But he cannot find his tape. So he cries. He starts his morning some days like this, crying. Today it’s for a tape. Other days a piece of crayon or a book, even a favorite toy. Little obsessions like this can lead to a day full of meltdowns. All his mind knows is that something is missing. Like a train out of its tracks. Everything stops. No amount of comforting even pleading can reset his mind back to its track until that thing is found. We begin today with a tape. It’s only 6am. But such is the life of a kid on the spectrum.
That we have been helping him get by, past the tapes, past the obsessions, past his tears, past his inability to stop them, is no small task too. We acknowledge. He cries. We give hugs to quiet the noise, he cries some more. We are stern, unyielding. Still he cries. His brain and mind is in control. So we look for the thing preoccupying his mind. He cries further. The tears are strong, unmanageable at times. Some may see cries for attention. Three people are looking for the tape. He knows we care. He sees it in our eyes. He mutters in between the tears, with his hands on his head, a desire to stop the tears, to quiet the inner noise, his brain seems to relish. To know him, his frustrations, his obsessions, his tears, even his inability to stop them, is to know love..
Ritamae Hyde, a Belizean poet wrote a poem about a Mother’s love. In it she shared how a mother’s love cannot be confined to beautiful words or abstract expressions. But her love is and remains one of the purest form of human expressions to be felt on this earth. This love she writes about so eloquently portrays what lies silent, under, between, hidden, beneath, and invisible for mothers, and other mothers who mother a child on the spectrum. With torn and crying hearts, we look for tapes. Amidst a desire to quell his inner noise, our insecurities, we turn the room upside down. We hold, we hug, we plead, we pray, still the brain wins. We hide our tears, our crying hearts wishes to spill. Only thing left then, since we have been here before, in times of labor, in time of unbearable pain, is the purest form of expression, one we felt in the beginning, one we still feel even in this moment, is love.
Through the tears, we love. Through the missing tapes or crayons or books, we love. Through the inability to stop, we love. That is the purest form of expression Ritamae writes about, one we want to share that all children on the spectrum need. Whether in the beginning or the end of a meltdown, for a missing tape or anything else, give love as only you can. Keep this mother’s love for children on the spectrum.